The Parkinson's disease e-diary: Developing a clinical and research tool for the digital age
Joaquin A. Vizcarra MD
Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA
Search for more papers by this authorÁlvaro Sánchez-Ferro MD, PhD
HM CINAC, Hospital Universitario HM Puerta del Sur, Móstoles, Madrid, Spain
Search for more papers by this authorWalter Maetzler MD
Department of Neurology, University of Kiel, Kiel, Germany
Search for more papers by this authorLuca Marsili MD, PhD
Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA
Search for more papers by this authorLucia Zavala MD
Hospital General de Agudos Jose Maria Ramos Mejia, Departamento de Neurología, Universidad de Buenos Aires, Buenos Aires, Argentina
Search for more papers by this authorAnthony E. Lang MD, FRCPC
The Edmond J. Safra Program in Parkinson's Disease and the Morton and Gloria Shulman Movement Disorders Clinic, University of Toronto, Toronto, Ontario, Canada
Search for more papers by this authorPablo Martinez-Martin MD, PhD
National Center of Epidemiology and CIBERNED, Carlos III Institute of Health, Madrid, Spain
Search for more papers by this authorTiago A. Mestre MD, MSc
Parkinson's Disease and Movement Disorders Center, Division of Neurology, Department of Medicine, The Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada
Search for more papers by this authorRalf Reilmann MD
George Huntington Institute and Dept. of Clinical Radiology, University of Muenster, Muenster, and Dept. of Neurodegenerative Diseases and Hertie Institute for Clinical Brain Research, University of Tuebingen, Tuebingen, Germany
Search for more papers by this authorJeffrey M. Hausdorff PhD
Center for the Study of Movement, Cognition, and Mobility, Tel Aviv Sourasky Medical Center; Department of Physical Therapy, Sackler Faculty of Medicine and Sagol School of Neuroscience, Tel Aviv University, Israel; Rush Alzheimer's Disease Center and Department of Orthopaedic Surgery, Rush University Medical Center, Chicago, Illinois, USA
Search for more papers by this authorE. Ray Dorsey MD, MBA
Department of Neurology and Center for Health + Technology, University of Rochester Medical Center, Rochester, New York, USA
Search for more papers by this authorSerene S. Paul PhD
Discipline of Physiotherapy, Faculty of Health Sciences, University of Sydney, Sydney, Australia
Search for more papers by this authorJudith W. Dexheimer PhD
Department of Biomedical Informatics, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA
Search for more papers by this authorBenjamin D. Wissel BS
Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA
Search for more papers by this authorRebecca L. M. Fuller PhD
CHDI Foundation/ CHDI Management, Inc., Princeton, New Jersey, USA
Search for more papers by this authorPaolo Bonato PhD
Department of Physical Medicine & Rehabilitation, Spaulding Rehabilitation Hospital, Harvard Medical School, Charlestown, Massachusetts, USA
Search for more papers by this authorAi Huey Tan MD, MRCP
Division of Neurology and the Mah Pooi Soo & Tan Chin Nam Centre for Parkinson's & Related Disorders, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia
Search for more papers by this authorBastiaan R. Bloem MD, PhD
Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Nijmegen, The Netherlands
Search for more papers by this authorCatherine Kopil PhD
The Michael J. Fox Foundation for Parkinson's Research, New York, New York, USA
Search for more papers by this authorMargaret Daeschler BA
The Michael J. Fox Foundation for Parkinson's Research, New York, New York, USA
Search for more papers by this authorLauren Bataille MS
The Michael J. Fox Foundation for Parkinson's Research, New York, New York, USA
Search for more papers by this authorGalit Kleiner MD, FRCPC
Jeff and Diane Ross Movement Disorders Clinic at ATC/Baycrest Health Sciences, Division of Neurology Department of Medicine University of Toronto, Toronto, Ontario, Canada
Search for more papers by this authorJochen Klucken MD
Department of Molecular Neurology, Movement Disorder Unit, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany
Search for more papers by this authorAristide Merola MD, PhD
Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA
Search for more papers by this authorChristopher G. Goetz MD
Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USA
Search for more papers by this authorGlenn T. Stebbins PhD
Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USA
Search for more papers by this authorCorresponding Author
Alberto J. Espay MD, MSc
Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA
Correspondence to: Dr. Alberto J. Espay, Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, OH 45267; E-mail: [email protected]Search for more papers by this authoron behalf of the MDS Technology Task Force and the MDS Rating Scales Program Electronic Development Ad-Hoc Committee
Search for more papers by this authorJoaquin A. Vizcarra MD
Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA
Search for more papers by this authorÁlvaro Sánchez-Ferro MD, PhD
HM CINAC, Hospital Universitario HM Puerta del Sur, Móstoles, Madrid, Spain
Search for more papers by this authorWalter Maetzler MD
Department of Neurology, University of Kiel, Kiel, Germany
Search for more papers by this authorLuca Marsili MD, PhD
Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA
Search for more papers by this authorLucia Zavala MD
Hospital General de Agudos Jose Maria Ramos Mejia, Departamento de Neurología, Universidad de Buenos Aires, Buenos Aires, Argentina
Search for more papers by this authorAnthony E. Lang MD, FRCPC
The Edmond J. Safra Program in Parkinson's Disease and the Morton and Gloria Shulman Movement Disorders Clinic, University of Toronto, Toronto, Ontario, Canada
Search for more papers by this authorPablo Martinez-Martin MD, PhD
National Center of Epidemiology and CIBERNED, Carlos III Institute of Health, Madrid, Spain
Search for more papers by this authorTiago A. Mestre MD, MSc
Parkinson's Disease and Movement Disorders Center, Division of Neurology, Department of Medicine, The Ottawa Hospital Research Institute, University of Ottawa, Ottawa, Ontario, Canada
Search for more papers by this authorRalf Reilmann MD
George Huntington Institute and Dept. of Clinical Radiology, University of Muenster, Muenster, and Dept. of Neurodegenerative Diseases and Hertie Institute for Clinical Brain Research, University of Tuebingen, Tuebingen, Germany
Search for more papers by this authorJeffrey M. Hausdorff PhD
Center for the Study of Movement, Cognition, and Mobility, Tel Aviv Sourasky Medical Center; Department of Physical Therapy, Sackler Faculty of Medicine and Sagol School of Neuroscience, Tel Aviv University, Israel; Rush Alzheimer's Disease Center and Department of Orthopaedic Surgery, Rush University Medical Center, Chicago, Illinois, USA
Search for more papers by this authorE. Ray Dorsey MD, MBA
Department of Neurology and Center for Health + Technology, University of Rochester Medical Center, Rochester, New York, USA
Search for more papers by this authorSerene S. Paul PhD
Discipline of Physiotherapy, Faculty of Health Sciences, University of Sydney, Sydney, Australia
Search for more papers by this authorJudith W. Dexheimer PhD
Department of Biomedical Informatics, University of Cincinnati College of Medicine, Cincinnati, Ohio, USA
Search for more papers by this authorBenjamin D. Wissel BS
Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA
Search for more papers by this authorRebecca L. M. Fuller PhD
CHDI Foundation/ CHDI Management, Inc., Princeton, New Jersey, USA
Search for more papers by this authorPaolo Bonato PhD
Department of Physical Medicine & Rehabilitation, Spaulding Rehabilitation Hospital, Harvard Medical School, Charlestown, Massachusetts, USA
Search for more papers by this authorAi Huey Tan MD, MRCP
Division of Neurology and the Mah Pooi Soo & Tan Chin Nam Centre for Parkinson's & Related Disorders, Faculty of Medicine, University of Malaya, Kuala Lumpur, Malaysia
Search for more papers by this authorBastiaan R. Bloem MD, PhD
Radboud University Medical Center, Donders Institute for Brain, Cognition and Behaviour, Department of Neurology, Nijmegen, The Netherlands
Search for more papers by this authorCatherine Kopil PhD
The Michael J. Fox Foundation for Parkinson's Research, New York, New York, USA
Search for more papers by this authorMargaret Daeschler BA
The Michael J. Fox Foundation for Parkinson's Research, New York, New York, USA
Search for more papers by this authorLauren Bataille MS
The Michael J. Fox Foundation for Parkinson's Research, New York, New York, USA
Search for more papers by this authorGalit Kleiner MD, FRCPC
Jeff and Diane Ross Movement Disorders Clinic at ATC/Baycrest Health Sciences, Division of Neurology Department of Medicine University of Toronto, Toronto, Ontario, Canada
Search for more papers by this authorJochen Klucken MD
Department of Molecular Neurology, Movement Disorder Unit, University Hospital Erlangen, Friedrich-Alexander-University Erlangen-Nürnberg, Erlangen, Germany
Search for more papers by this authorAristide Merola MD, PhD
Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA
Search for more papers by this authorChristopher G. Goetz MD
Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USA
Search for more papers by this authorGlenn T. Stebbins PhD
Department of Neurological Sciences, Rush University Medical Center, Chicago, Illinois, USA
Search for more papers by this authorCorresponding Author
Alberto J. Espay MD, MSc
Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, Ohio, USA
Correspondence to: Dr. Alberto J. Espay, Gardner Family Center for Parkinson's Disease and Movement Disorders, Department of Neurology, University of Cincinnati, Cincinnati, OH 45267; E-mail: [email protected]Search for more papers by this authoron behalf of the MDS Technology Task Force and the MDS Rating Scales Program Electronic Development Ad-Hoc Committee
Search for more papers by this author
Supporting Information
| Filename | Description |
|---|---|
| mds27673-sup-0001-AppendixS1.docxWord 2007 document , 42 KB | Supplementary Material S1 Review of Parkinson's Disease diaries |
| mds27673-sup-0002-AppendixS2.docxWord 2007 document , 20.8 KB | Supplementary Material S2 Quality Criteria of 12 available diaries (1/2) |
| mds27673-sup-0003-AppendixS3.docxWord 2007 document , 17.3 KB | Supplementary Material S3 Comments from MDS Members |
Please note: The publisher is not responsible for the content or functionality of any supporting information supplied by the authors. Any queries (other than missing content) should be directed to the corresponding author for the article.
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